Share your story!

Name *
Name

I TYPE IN UPPER CASE BECAUSE I AM REGISTERED AS PARTIALLY SIGHTED BECAUSE OF AN ACQUIRED BRAIN INJURY.
— Davie Doyle, April 11th 2015
I’m a nice man. I’m happy.
This is my problem: the brain.
One side doesn’t work.
Problems with reading, writing or math.
— Ronald Schroeder, April 3rd 2015
I had my stroke at March 27, 2005. I was a quarter left from graduating college. I had a massive stroke and I have aphasia. We had no idea what aphasia was.
— Annie Humling, March 17th 2015
A year and a half ago, at age 29, I had a stroke while running outside. I have a degree in computer science and math and was a senior software engineer. My stroke was bilateral and affected both sides of my brain. In the beginning of my stroke, I was left with expressive, severe aphasia, verbal apraxia, and auditory processing deficits. Through lots of rehabilitation, I regained my speech. I’m still attending speech therapy to overcome my auditory processing problems. As a result of my stroke, I lost my career and my husband and I put off plans to have children. My husband is my biggest advocate and helps me with my speech therapy. Luckily, I am very independent and I can drive. I’m going to keep pushing to get better.
— Megan Whitaker, March 10th 2015
At 51 in 2011 I had my stroke. I have a degree. In electronic music and had a high pressure job in IT. My father died of a stroke at 29. I was also the care giver to my wife who took her own life after my stroke to not be a burden because I could not care for her. My world is crumbling I have trouble following instructions verbal and written especially in crowds. High turnover in doctors and PT left me with little understanding of my condition and dismiss causes.
— Mike Newton, March 5th 2015
Had a stroke recently at age 25, and people are having a hard time understanding why I can communicate so much more clearly with my typing than with my speech. Sometimes if I speak too much out loud or there is too much noise around me, I completely shut down and it starts to feel like everyone is talking under water. I stop being able to understand, and I stop being able to express my thoughts. It is terrifying and frustrating and No one understands. I feel like I can’t make them understand, because I can’t speak clearly! I am really excited to see this documentary and to share it with people so hopefully they can more fully understand all of the strange language- and communication-related struggles I have been facing lately.
— Laura Root, March 2nd 2015
My husband Roy’s stroke was 10 days after his 49th birthday in 2013. He was a highly sought after musician in the Atlanta area for years before his stroke. The stroke left him with Aphasia. His speech is finally coming a little easier for him after 2 years, but gets so much worse when he is tired, frustrated or gets in a hurry. He can still sing and that is such an amazing thing. His friends call it the Mel Tillis effect....Stuttering over words when he speaks, but still able to sing.
It breaks my heart to see this man, who loves to talk struggle so much. We don’t know if he will ever be back to where he was before his stroke, but we are thankful for how far he has come. We like many others had never heard of Aphasia before his stroke...
— Kathy Key, Febrary 27th 2015
We are stroke survivors, my husband, myself and our 3 daughters. My husband had a stroke in September 2013, he was 46. The only words he seemed to be able to speak were hello and yes but slowly with the help of countless speech therapist he slowly started to find his words. I call these women my angels, they have revived my husband and slowly brought him back to me. Although we love a good game of charades with each passing day the words come a little easier. My husband was also a prolific reader, he loved to read, it was months after the stroke before he could read again and he still struggles. My biggest fear with all of this is that he will stop trying, every little bit of progress he makes comes with such effort, but he keeps at it and for that I am grateful. Thank you for giving a voice to the voiceless.
— Kim Dufour, Febrary 24th 2015
My grandfather had a stroke many years ago when I was just a little girl. He had aphasia as well as unilateral paralysis. His impaired communication and motor function was devastating for him as well as for us, his family. Many years later I became a speech pathologist and I have a special interest in treating patient’s with aphasia. An inability to communicate effectively is as frustrating as it gets so please have patience and understanding for individuals with aphasia. Take a minute to think about how lucky you are to be able to have speech and language that flows like the wind.
— Carol Letzter, January 21th 2015
I had a stroke nine years ago. I realized that I had aphasia. I am a history Professor. What a shock it was to realize that I couldn’t speak, write, and read history books! I have been struggling to write and speak since then. Slowly, I can write, but speaking has been quite a struggle. Despite my education, what a surprise it was to realize I had no idea what Aphasia was.
— Daniel Goffman, January 9th 2015
Our then 18 year son had a massive stroke the summer of 2013 just weeks before reporting to his freshman year at Liberty University. Needless to say he has been in a fight to recover his language and still hopes to attend college one day. Physically he still faces much OT work, he is however able to walk and run as well as ride a bike, vision wise he lost right peripheral vision in both eyes. He has made tremendous progress but only because we have been able to provide countless hours of intensive speech therapy going on now for almost one and a half years. We use community based therapy meaning we have a number of volunteers who have sessions with him weekly and he also sees two full-time SLPs five times a week. Recovering your language is all about daily intensity and repetition. Recovery is possible but the hours are long and tedious. He wants to recover and he works hard at it, there is no substitute. You have to own it and go after it. And that’s what he is doing on a daily basis.
— Austin Harrell, January 6th 2015
I have a stroke 10 years ago and also aphasia. I was a school librarian. Best.
— Barbara Kessler, December 18th 2014
“Stroke May 4, 2012”
— Robert Kampf, December 16th 2014
I don’t think we know how it feels to have aphasia. What a nightmare must be to have aphasia. How do people recover from that? I don’t know, but they do. And if you are there, and have patience for them, they manage. That´s courage!
— Dr Robert Volin, Ph.D., CCC-SLP, March 17th, 2014
I never heard of aphasia, I never even heard of the word…A year after his stroke, my husband and I have become more reliant on each other. I let him go alone for the ride. He needs a break, he worked hard…he’ll be back.
— Malvina Chambers, December 3th, 2013
My son Ed has Aphasia. If you ask him what makes him happy, he will say his children and photography. Photography gives him a way to express himself. It helps his communication. I would say to anyone who has aphasia that they shouldn’t be afraid of new things because it can only help.
— Rosemary Morgan, November 21th, 2013
My wife has aphasia and after she had a stroke she said that for a period of time even her internal dialog was gone.
When a person has a stroke it’s extremely isolating. Not only you have trouble to communicate, but people around you don’t come around much.
— Jeff Phillips, December 6th, 2012
Before I had the stroke I spoke 6 languages and suddenly one day everything is gone. Why? Why me? I don´t know, I don´t understand. No talk, no speak, no TV … It’s like inside yourself.
— Tinna Geula Phillips, December 6th, 2012